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Download Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics? (Medical Law and Ethics) eBook

by Bernice Elger

Download Ethical Issues of Human Genetic Databases: A Challenge to Classical Health Research Ethics? (Medical Law and Ethics) eBook
Bernice Elger
Medicine & Health Sciences
Routledge; 1 edition (July 28, 2010)
332 pages
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1751 kb
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Home Browse Books Book details, Ethical Issues of Human Genetic Databases: . .The book will interest academics, human rights activists and legal practitioners in the field of disability rights. There are numerous biobanks all over the world. Other biobanks have been built up by public health agencies routinely sampling the blood of newborns for genetic testing at birth.

Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena.

Start by marking Ethical Issues of Human Genetic Databases: A.

Medical Law and Ethics series. GenEthx: Genetics and Ethics Database. After describing the methodology, the findings regarding four topics are presented: (1) the ownership of human biological. Related Items in Google Scholar. Показать полную информацию. Ethical norms and the international governance of genetic databases and biobanks: findings from an international study . Capron, Alexander Morgan; Mauron, Alexandre; Elger, Bernice Simone; Boggio, Andrea; Ganguli-Mitra, Agomoni; Biller-Andorno, Nikola (2009-06).

Professor Bernice Elger teaches health law and bioethics at the Institute of Legal Medicine, University of Geneva. She is a member of an international collaboration project on ethical issues of human genetic databases, with involvement of the Department of Ethics, Trade, Human Rights and Health Law at the World Health Organization (WHO) headquarters in Geneva, a member of the subcommission who wrote the Swiss guidelines on biobanks, a member of the ethics board of ist, an international data and sample.

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series Medical Law and Ethics.

Human - Genetics - Databases - Moral - Medical - Medicine . ELGER, Bernice Simone. Ethical issues of human genetic databases. London, New-York : Ashgate, 2010.

ISBN: 978-0-7546-7492-4.

Ethics of Human Genetic Studies in Sub-Saharan Africa: The Case of Cameroon Through a Bibliometric Analysis. Ambroise Wonkam, Marcel Azabji Kenfack, Walinjom Ft Muna & Odile OuweMissiOukemBoyer - 2011 - Developing World Bioethics 11 (3):120-127. The Nature and Significance of Behavioural Genetic Information. Ainsley Newson - 2004 - Theoretical Medicine and Bioethics 25 (2):89-111. Anna C. Mastroianni, Ruth R. Faden & Daniel D. Federman (ed. - 1994 - National Academy Press.

Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.