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Download The Scleroderma Book: A Guide for Patients and Families eBook

by Maureen D. Mayes

Download The Scleroderma Book: A Guide for Patients and Families eBook
ISBN:
0195169409
Author:
Maureen D. Mayes
Category:
Medicine & Health Sciences
Language:
English
Publisher:
Oxford University Press; 2 edition (May 1, 2005)
Pages:
224 pages
EPUB book:
1651 kb
FB2 book:
1232 kb
DJVU:
1891 kb
Other formats
doc mobi docx lit
Rating:
4.2
Votes:
416


The Scleroderma Book has long been considered the leading source of information for patients suffering with this .

The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life.

Mayes' book is the ultimate resource for patients and their families seeking to gain a better understanding of this complex disease

Mayes' book is the ultimate resource for patients and their families seeking to gain a better understanding of this complex disease. Her compassion and dedication for her patients is evident throughout the book, from her easy-to-understand description of scleroderma and its manifestations, to more personal subjects such as depression, lifestyle changes, and patient-physician relationships

The Scleroderma Book book.

The Scleroderma Book book. Mayes draws on her extensive experience treating scl The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease.

Mobile version (beta). The Scleroderma Book: A Guide for Patients and Families. Download (pdf, . 8 Mb) Donate Read. Epub FB2 mobi txt RTF. Converted file can differ from the original. If possible, download the file in its original format.

is Professor of Medicine at the University of Texas Houston Medical School, where she directs the Scleroderma Clinic. She is the author of multiple papers and book chapters on the subject and is a past president and director of the National Board of Directors for the United Scleroderma Foundation, and serves on its Medical Advisory Board. Her professional career has been devoted to the study and treatment of scleroderma.

The Scleroderma Book. A Guide for Patients and Families. Practical, well-written book containing everything a scleroderma patient needs to know

The Scleroderma Book. Practical, well-written book containing everything a scleroderma patient needs to know. Updated chapters on the genetics of scleroderma. New treatments for complications of this disease. The Scleroderma Book.

It starts off with the basics and goes deeper into the daily life and choices someone with scleroderma has to deal with. And despite what you may think, it’s not a dry read.

The Scleroderma Book A Guide For Patients And Families. I am reading a book called "The Scleroderma Book" by Maureen Hayes. Book: When the Body Says No. Books on Scleroderma. In: Scleroderma Foundation. Hello everybody, first of all I have to apologize for my limited English, I'm German illness.

Now, in The Scleroderma Book, one of the nation's leading authorities provides a comprehensive guide written specifically for patients and their families. ISBN13: 9780195115079.

His The Lupus Book, originally published in 1995, immediately established itself as the most readable and helpful book on the .

His The Lupus Book, originally published in 1995, immediately established itself as the most readable and helpful book on the disease.

The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation
  • Foginn
This is a great first book for anyone with scleroderma. It provided me with good information of things I didn't know yet from searching the internet. I was diagnosed with scleroderma in June 2017, and I decided then I would do everything I could to battle it. It definitely is not a party. I also decided though, that right from the beginning, I would approach this with the most positive outlook that I could. Starting right out from the gate, I thought it might be difficult for me to do, considering I've lived with depression for much of my life. Instead, it has been possibly one of the best things that happened to me. I know, I know... that sounds crazy, but I've researched as much as I can about scleroderma and have changed my life for the better. I have omitted soda and started drinking only filtered water, from glass bottles only (plastic can leech chemicals into the water). I used to eat alot of processed and fast food, because it was easy... and of course, tasted pretty darn good lol! Now, I only eat whole foods, without sugar and gluten free as much as possible. I make my own yogurt, sauerkraut, sour cream, cream cheese and kombucha (they all give your GI tract good bacteria and different probiotics. Experts say that your gut contributes so much to your immune health and inflammation. If it's in disrepair [ie: leaky gut], it's very detrimental to your health). Also, researching and then adding various supplements is contributing to my better health. Overall, I've felt better than I ever had in my life, and this sounds contradictory... although my body is normally wracked with pain much of the day (some days are fair, some are pretty crappy... it's basically a way of life now, and I'm handling it), my sense of well being has improved.

Now, I'm not saying that there are days when I'm really, really mad. Sometimes I just think that it's just not fair that this is happening. But that's ok. You're definitely allowed to have these days...it can actually give you some fuel to add to your fire to survive. It usually only lasts a day for me, then I'm back on track, being as positive as I can.

I'd recommend this book, as any extra information you can learn about your condition will give you ammunition against it. Another thing I'd recommend to anyone with scleroderma... Try to find the best doctor you can so you'll have the best support throughout your journey. Unfortunately, I first went to the doctor who my PCP referred me to. She prescribed a medication containing an antibiotic, which completely obliterated the good bacteria in my gut. I honestly do not know what she was thinking. It actually gave me Candida, and landed me in the hospital. This is why I adopted the diet I spoke of earlier. I'm still fighting it.... and I've almost beat it.

You can look at having scleroderma any way you like, but it certainly makes it easier if you keep your attitude positive as much as possible. There are also other books on Amazon about scleroderma. I recommend "Holding on for dear life" by Liz Devivo. It isn't informational, but it's about Liz, "giving practical and beautiful insights on coping and surviving a catastrophic illness."

If you've got scleroderma, good luck with your journey. There is the International Scleroderma Network, ISN, which is the supportive organization for persons with the condition. It is also a good resource for people with scleroderma.
  • Shazel
I purchased this for a newly diagnosed friend. Yes, the second edition is 12 years old. But I still found it relatively easy to understand, with helpful hints & useful information, in regard to both physical and emotional aspects of the disease. The chapter on potential kidney involvement in 20% of patients is one that should be read by everyone with scleroderma - because unlike many aspects of the disease that are slow in onset, the spike in blood pressure it can cause (with few symptoms) may lead to relatively quick and irreversible kidney damage and the need for dialysis. The physician/expert/author of this book therefore recommends self-testing of blood pressure twice a week for all scleroderma patients, and seeing a doctor if it spikes for 3 or more days in a row (with ACE inhibitor drugs used to bring pressure back to normal, and saving your kidneys!) . This crucial information for the patent -in and of itself- is worth the price of the book (I only paid $5 used- in excellent condition).
  • Cargahibe
This is a very life changing personal disease that baffles most doctors. This books offers information in a very clear tone and well balanced overview of a seldom well understood disease. As a caretaker of someone with the disease for almost 10 years from original diagnosis and almost 30 years of symptoms is enlightening to read such a resource from a doctor in the trenches. Hope to reach out and meet the author to express our gratitude for sharing her experiences.
  • Roru
Our doctor recommended we read this book. I found that there isn't much information in it that I didn't already know from reading the internet. Would not recommend buying if you can use google.
  • Watikalate
This is a good introduction to Scleroderma by a leading expert in the disease. It is simple and straightforward and generally accurate. It is particularly good as an introduction for new patients and their family.
  • Jaberini
Dr. Mayes clarifies many things about scleroderma. The book is extremely well organized, kept patient and family friendly and explains every term and process one might not be very familiar with. I have appreciated the book immensely and recommend it to anyone with or interested in this disease. I wish Dr. Mayes would write an update.
  • Dark_Sun
I was just diagnosed. I felt the need to find out what "it" was. This helped me to have a better understanding of the "what". I feel better equipped to take charge of this disease.
Reading other reviews I was confused as to what to expect. Yes, you can google everything and a lot will come up. Remember however that when this book was originally written, it was when hardly any info was available. Dr. Mayes literally wrote the book on Scleroderma when no one else did. She has it all in one place for you. The internet sometimes especially for newly diagnosed can be very scary. I remember just googling and thinking I was dying in less than 10 years. I recommend this book and cannot wait for Dr. Mayes to update it again.